Dear Shipston Members
You may have seen the front page story on today's edition of the Daily Mirror, but you may not appreciate that the Father of two boys concerned is local or that our Club Captain, Matt Corby, has a personal connection to the family:
The two 7 year old boys in the story are identical twins called Luis and Kian, and they have been diagnosed with Krabbes - a very rare genetic disorder. This is a progressive neurological condition with a very short life expectancy. The boys have been offered a stem cell/ bone marrow transplant, but currently the authorities cannot find a suitable donor match internationally.
The Antony Nolan trust are starting a national media campaign to find a donor for the two boys, hence the story in today's Daily Mirror. Luis and Kian urgently need this transplant and the rugby club are helping to spread the word by asking people to come forward to register as a donor. It's a simple salvia test which can be done using the post in order to register. The Ideal age for donors is 16-30.
Savebabiesuk.org are supporting and helping with the boys case and their website will give you more info on Krabbes.
As you can imagine this is a very hard time for the family and Matt has asked that we do our bit to help by are reaching out to anyone who can help us.
Our very best wishes go out to Dean, Kate and the two boys (Luis and Kian).